If you received a diagnosis of pulmonary fibrosis, it could seem overwhelming, especially if you are newly diagnosed. Pulmonary fibrosis is not something most people are familiar with. Having a lot of questions is normal. Your doctor probably explained the basics, such as what pulmonary fibrosis involves and typical symptoms to expect. But there is a lot more to learn about … [Read more...]

At the end of 2017, the Food and Drug Agency announced that it was going to crack down on scams involving stem cells.  I have written repeatedly about this scam that is taking advantage of patients with advanced lung disease. Con-Artists have been scamming patients with IPF for many years now - offering them the hope of completely unfounded improvement in their disease … [Read more...]

Your pulmonologist measures your lung function using different tests. Collectively these tests are called pulmonary function tests (PFTs). The three basic parts are: Spirometry Lung volumes Diffusing capacity Spirometry is the easiest to perform. You basically take a full breath in and then blast out a maximal breath as hard and fast as you can until you are … [Read more...]

Advanced Directives Have you thought about what you would want to be done medically in an emergency if you could not speak for yourself? It may not be a subject that you enjoy thinking about. But knowing you’ll receive the care you want can give you peace of mind. Having your wishes documented in an advanced directive can be helpful. What is an Advanced Directive? An … [Read more...]

If you have pulmonary fibrosis, you might have heard the term palliative care. But you may not be sure exactly what it involves. Some people confuse palliative care with hospice or assume it is only for people who are at the end of their life. Understanding what palliative means and how it can play a role in treating pulmonary fibrosis can help you to do everything possible to … [Read more...]