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Idiopathic Pulmonary Fibrosis

Jeremy Feldman, MD

  • What is Idiopathic Pulmonary Fibrosis?
    • Idiopathic Pulmonary Fibrosis Definition
    • Symptoms of Idiopathic Pulmonary Fibrosis
    • Causes of Idiopathic Pulmonary Fibrosis
    • Who Gets Idiopathic Pulmonary Fibrosis
    • Gastro-Esophageal Reflux (GER) and Idiopathic Pulmonary Fibrosis
    • Interstitial Lung Disease vs. Idiopathic Pulmonary Fibrosis
    • Is Pulmonary Fibrosis Hereditary?
    • Research, Life Expectancy and Prognosis for Idiopathic Pulmonary Fibrosis
  • Diagnosing & Monitoring PF
    • Monitoring Progress of IPF
    • Idiopathic Pulmonary Fibrosis Diagnosis
    • Chest X-rays Used in IPF
    • CPET used in IPF
    • HRCT Scans Used to Evaluate IPF
    • Lung Biopsy To Diagnose IPF
    • Pulmonary Function Tests (PFTS)
    • Six Minute Walk Test To Monitor IPF
    • Stages of Idiopathic Pulmonary Fibrosis
    • Complications of Idiopathic Pulmonary Fibrosis
  • PF Treatment Options
    • Esbriet (pirfenidone) Used to Treat IPF
    • OFEV (nintedanib) Used to Treat IPF
    • Pulmonary Rehab for IPF Patients
    • Lung Transplantation for Pulmonary Fibrosis
    • Oxygen Used to Treat IPF
      • Update on Oxygen Use
    • Clinical Trials in Idiopathic Pulmonary Fibrosis
    • IPF & Leg Swelling
    • Pulmonary Hypertension and Idiopathic Pulmonary Fibrosis
    • IPF Exacerbation
  • PF Advocacy & News
  • FAQ’s
    • Respiratory failure, NSIP, diet
    • Leg swelling, lung biopsy, side effects & pets
    • FAQ’s Enzyme Therapy, Progression of IPF & Oxygen
    • FAQ: Diarrhea, Fibrosis Reversal, IPF Symptoms
    • FAQ: Oxygen Flow, Anesthesia & Genetics
    • FAQ: Contagious Cough? Stem Cells, Familial IPF, Flying
    • FAQ: GERD, Fatigue & Environmental Exposure
    • FAQ: How to Travel to Your Doctor’s Office with Oxygen
    • FAQ: Lung Biopsy with Pulmonary Fibrosis
    • FAQ’s: Alcohol, Clinical Trials, Pulmonary Function Testing
    • FAQs: Emphysema, Exercise & Lung Biopsy

FAQ: How to Travel to Your Doctor’s Office with Oxygen

June 11, 2018 By Dr. Jeremy Feldman

oxygen tanks for IPFPatients with IPF have many challenges in a typical day.  One important challenge is how to get to their doctor’s appointments when they require higher oxygen flow rates.  This is a particular challenge for patients that live at a distance from their doctors and require flow rates that can’t be achieved with portable oxygen concentrators.

How Much Oxygen Flow Do You Actually Need?

The first step is to understand how much oxygen flow you actually need to be comfortable and feel safe. This is made a little easier if you have a pulse oximeter (device that measures your oxygen saturation).  Sit at home on your portable oxygen system and adjust the flow rates until your saturations are in the low 90% rate (90-94%). Find the lowest flow rates that achieve these levels and have you feeling comfortable.  Next figure out how you will be getting into the car.  Will you walk or use a wheelchair?  If you require high flow rates with activity then use a wheelchair or other assistive device to get as close as possible to the car.

How Long Will Your Oxygen Tank Last?

Next figure out how long your tank will last at the flow rates that you need when you are sitting. Most patients that require more than 3 liters/minute flow should have “E” tanks.  These are the 29-inch tall tanks that are on a rolling carrier. Here are some approximate guidelines for E tanks that are full (2000 PSIG) when used in the continuous flow mode.

  •             3 l/m lasts 3 hours
  •             4 l/m lasts 2.25 hours
  •             5 l/m lasts 2 hours
  •             6 l/m lasts 1.5 hours
  •             7 l/m lasts 1.25 hours
  •             8 l/m lasts 1 hours

An oxymizer cannula may allow you to reduce your flow rate and keep your saturations up.  Patients requiring more than 3 l/m flow should strongly consider trying this typo of oxygen cannula system.

See if Your Doctor’s Office Will Provide Oxygen When You Arrive

The next step is clarifying with your doctor that they will have oxygen for you to use once you arrive in their office.  In my practice we are happy to provide patients with oxygen while they are in our office. This dramatically reduces the number of tanks you will need to bring. When you arrive at your doctor’s office use your wheelchair or ask if the office can meet you at a drop off point with a wheelchair.

Plan for The Worst Case Scenario

I strongly encourage patients to plan for a worst care scenario when planning how many tanks to bring. At a minimum you should bring twice as many tanks as you think that you will need.  This prevents an emergency if you experience traffic or car trouble that delays you.

Work with your oxygen company to ensure that you have enough tanks.  Your doctor’s office can help with additional orders for the oxygen company. Many patients mistakenly believe that the highest flow meter (regulator) goes to 6 l/m.  There are home concentrators that go to 10 l/m and portable regulators that go as high as 10 l/m as well.

 

e cylinder time chart for oxygen

Filed Under: IPF Tips

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What is IPF?

  • What is Idiopathic Pulmonary Fibrosis?
    • Symptoms of Idiopathic Pulmonary Fibrosis
    • Causes of Idiopathic Pulmonary Fibrosis
    • Who Gets Idiopathic Pulmonary Fibrosis
    • Gastro-Esophageal Reflux (GER) and IPF
    • Interstitial Lung Disease vs. Idiopathic Pulmonary Fibrosis
    • Is Pulmonary Fibrosis Hereditary?
    • Research, Life Expectancy & Prognosis for Pulmonary Fibrosis

Diagnosing IPF

  • Idiopathic Pulmonary Fibrosis Diagnosis
    • Chest X-rays Used in IPF
    • CPET used in IPF
    • HRCT Scans Used to Evaluate IPF
    • Lung Biopsy To Diagnose IPF
    • Pulmonary Function Tests (PFTS)
    • Six Minute Walk Test To Monitor IPF
    • Stages of Idiopathic Pulmonary Fibrosis
    • Complications of Idiopathic Pulmonary Fibrosis

Treating IPF

  • Pulmonary Fibrosis Treatment Options
    • Esbriet (pirfenidone) Used to Treat IPF
    • OFEV (nintedanib) Used to Treat IPF
    • Pulmonary Rehab for IPF Patients
    • Lung Transplantation for Pulmonary Fibrosis
    • Oxygen Used to Treat IPF
    • Clinical Trials in Idiopathic Pulmonary Fibrosis
    • IPF & Leg Swelling
    • Pulmonary Hypertension and Idiopathic Pulmonary Fibrosis
    • IPF Exacerbation

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