Knowledge is power! We hope to spread the word about IPF to empower patients and caregivers and drive interest in treatment and research to find a cure for IPF. We are participating in a national and international effort to raise awareness about Idiopathic Pulmonary Fibrosis. What is IPF? IPF is an as yet irreversible scarring process of the lungs. The two cardinal symptoms … [Read more...]
End of Life Planning for IPF Patients
Caring for patients with Pulmonary Fibrosis requires not just caring for their lung disease but also the impact that their lung disease has on them overall. With the approval of Esbreit (pirfenidone) and OFEV (nintedanib), we finally have medicines that slow the progression of IPF. However, these drugs are not a cure. Despite our best efforts, most patients with IPF will … [Read more...]
How to Get the Most Out of Your Doctor’s Visit
A visit with your doctor is an important opportunity to share information about how you are doing and also have your questions answered. In a typical follow up doctor’s visit, you may only get 10 minutes with the physician so it is crucial to have a game plan to maximize the yield from that short period of time. Your initial consultation is generally 30 to 45 … [Read more...]